Friday, October 4, 2013
I carry her heart
I was at an appointment and this person was the tech taking care of me. I see her about once a year, and when she asked me what was new, I told her I now had seven grandchildren with another on the way. This led to a discussion of how many children I had. At first I said I have six, not mentioning Celeste. But as the conversation progressed, and she mentioned a family member who was expecting at age 40, I said that I too had a baby at that age. I briefly shared the fact that my daughter had only lived for four months, and that despite her challenges she was a huge blessing in my life.
I've had many responses to Celeste’s story, but I won’t forget this one.
When I said that Celeste had a heart defect, I could tell her interest was piqued, and she wanted to ask more. When I said that I didn't know about the defect until my baby’s birth – that it had not been detected by ultrasound – she said, “If you had known, would you have terminated?” I responded quickly with the truth, “absolutely not! Heavens no.”
Then she asked if I had suspected anything was wrong during my pregnancy. When I said that I hadn't she started to talk quickly, eagerly sharing her story.
“I had a pregnancy once,” she began. “I knew something was wrong, and even though my doctor told me everything was fine, I just felt like something was off, so she ordered another ultrasound.” She laughed. “Well, you know, Mom knows best and all that.”
I started wondering where this story was going. I had just told her that my daughter had died after we removed her life support, after discovering she had brain damage, after watching her suffer through numerous illnesses, after navigating the emotional roller coaster of a possible transplant.
“Well wouldn't you know,” she went on. “The baby wasn't forming right. I looked at it on the ultrasound, and it looked like it had a hole in its heart.”
I started to feel a little dizzy. I thought about Celeste and the holes in her heart. I also thought of the many babies I've heard of who were born with holes in their heart, who are now grown up healthy adults.
“They told me that I probably wouldn't abort spontaneously, but of course I knew what I had to do,” she sighed. “I felt so bad, but you know, I couldn't imagine looking at it and seeing that….They told me that some people would say this was an abortion, for religious reasons, but , well…. I did go to some counseling about it. I used to feel really bad. My husband wasn't as upset as I was. But you know, the mom is a mom right away. The dads don’t really connect until they hold that baby.”
Essentially, she said this: "You just told me the story of your much-loved child, and how her life was difficult yet such a blessing. If I had a child like that,I would have killed her. In fact, I did."
That sounds and feels like madness.
I didn't know what to say or do, so I did and said nothing. I just sat there, numb, while she continued her work, telling me the story of the baby she aborted because “it” wasn't perfect, because “it” might suffer, because “it” might die soon after birth. We went on to talk about how much ultrasounds could detect nowadays, and how cool it is to see a 3-D one.
I am not surprised that she had an abortion. Nor am I surprised that she convinced herself that she didn't. I am sure this caused her a good deal of suffering, and no matter what you might think, I don’t think she is a horrible human being. I do not judge her; while I don’t know her well, my gut tells me she is a genuine woman who truly meant to make the right choice. She had been lied to by medical professionals and the culture and pretty much the whole world. She had believed the great lie that suffering is the enemy.
I am simply horrified that my telling of Celeste’s story may have somehow confirmed her belief that she “did the right thing.” I am sick thinking that somehow the fact that my daughter suffered and died at a young age meant that I should have ended it before her birth, limiting our collective pain.
I wanted to tell her that despite Celeste’s sufferings, I do not regret for one moment that she lived. Every human being who is allowed to be born will suffer – even those of us whose hearts arrive intact. I wish I had had the presence of mind to tell her that.
Instead I mumbled an apology for bringing up something that might have made her uncomfortable. I said a silent prayer, a plea for mercy for myself and this woman and for all of us here on this planet who don’t seem to know how to love. I offered up my agony for a couple I know of whose two month old baby died last week.
Then I thanked God that my daughter died in my arms and that I was able to bury her precious body in our family plot. I thanked God that I had been given what is apparently an extraordinary grace – the grace to suffer with my daughter at the foot of her cross.
When I first met this woman I liked her right away. She is kind and has cared for me very patiently more than once. I still like her, and I’m reminded I need to love her. And pray for her.
I write this not so that we can all sit back and judge her and say that I’m so much better because I chose to let my child die a natural death. I write this because there are holes in my heart, too, and writing sometimes helps me patch them. Despite my brokenness, I’m still breathing, even though it seems like I shouldn't be sometimes. I pray that she and I can forgive and be forgiven and heal. And really think about what it means to suffer, to live – and most of all, to love.
[i carry your heart with me(i carry it in]
i carry your heart with me(i carry it in
my heart)i am never without it(anywhere
i go you go,my dear;and whatever is done
by only me is your doing,my darling)
no fate(for you are my fate,my sweet)i want
no world(for beautiful you are my world,my true)
and it’s you are whatever a moon has always meant
and whatever a sun will always sing is you
here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud
and the sky of the sky of a tree called life;which grows
higher than soul can hope or mind can hide)
and this is the wonder that's keeping the stars apart
i carry your heart(i carry it in my heart)